World Hemophilia Day 2020

“Procure+spicy”

MONTREAL, April 17, 2020 /PRNewswire/ – April 17, 2020 celebrates 30+ years of World Hemophilia Day. The longevity of this tournament is proof of the dedication and tight-knit nature of our community. The theme of World Hemophilia Day in 2020 is “Procure+spicy”. It be a name to action for each person to reduction drive the WFH imaginative and prescient of “Therapy for All” at the community and global level. Given the most modern COVID-19 crisis, the WFH is encouraging each person to safe entangled virtually on social media and on our have World Hemophilia Day microsite: worldhemophiliaday.org.

Everyone can play a portion—from sufferers, relatives, and caregivers, to corporate companions, Hemophilia Therapy Centre (HTC) personnel and of us that support their nationwide member organization (NMO). We have to support each person to “Procure+spicy” virtually and support amplify the dignity of inherited bleeding disorders and the have to operate access to ample care doable all over the put on this planet. Ought to you are exhibiting support, you take half in a portion in the intention of Therapy for All.

“Becoming concerned virtually in the bleeding disorders community is so vital. World Hemophilia Day is a chance to illustrate the realm how needed taking action is. It be moreover an dazzling capability for us all to feel proud of what we’re doing in the name of Therapy for All.” 

—Alain Weill, President of the WFH

Whereas our community can now not defend portion in the “Gentle it up Pink” campaign this year by visiting landmarks thanks to the COVID-19 crisis, there are assorted techniques we’ll be succesful to play a portion. Shall we embrace, submit a image of yourself carrying something red to illustrate your support of the community. Post selfies and steal with the bleeding disorders community on our social media pages. Also, it’s good to to perhaps perhaps also share your legend on worldhemophiliaday.org about your ride living or caring for any individual with a bleeding dysfunction, or by sharing how you are impacted by the COVID-19 pandemic. There is loads it’s good to to perhaps perhaps also dwell virtually to share what World Hemophilia Day capability to you!

WFH support for the bleeding disorders community is supplied by many endeavours which are making a distinction in the neighborhood as of late, in conjunction with:

  • WFH functions which are accomplished in collaboration with nationwide member organizations (NMOs) and a real community of medical and lay volunteers, and are in step with a comprehensive style mannequin that targets to total sustainable comprehensive care and “Therapy for All”.
  • The WFH Humanitarian Wait on Program which supplies a unfold of built-in healthcare style practicing functions to be obvious local infrastructure and medical expertise in increasing international locations maximizes the usage of donated merchandise.
  • The World Alliance for Development (GAP) Program is the WFH flagship style program geared toward closing the gap in remedy between developed and extending international locations in three key areas: the different of of us born with hemophilia and of us that extend adulthood; the estimated and proper different of of us known with bleeding disorders; and the need versus the provision of remedy merchandise.
  • WFH World Bleeding Disorders Registry (WBDR), which makes use of info assortment to reach the realizing and care of of us with hemophilia worldwide. An accessible patient registry strengthens our skill to name, diagnose, take care of, and worship of us living with hemophilia and diverse uncommon inherited bleeding disorders.
  • The WFH Annual World Look which collects celebrated demographic info and info on access to care and remedy merchandise in advise to produce hemophilia organizations, hemophilia remedy centres and health officers with priceless info to support efforts to enhance or defend the care of of us with bleeding disorders.
  • The WFH eLearning Platform which aspects a full bunch of mighty academic belongings for customers with both medical and non-medical backgrounds—in loads of languages—in conjunction with guides, fact sheets, videos, articles, games, and interactive modules which are downloadable free of charge, and are successfully-suited to any studying style or intention of interest.

The WFH would fancy to thank our 2020 World Hemophilia Day sponsors for their continued support:

Bayer

Grifols

Sanofi Genzyme

BioMarin Pharmaceutical Inc.

Kedrion

Sobi

Biotest

Novo Nordisk

Spark Therapeutics

CSL Behring

Octapharma

Takeda

F. Hoffman-La Roche Ltd.

Pfizer

uniQure

GC Pharma

Precision Biologic


About hemophilia and assorted bleeding disorders

Hemophilia, von Willebrand disease, inherited platelet disorders, and diverse side deficiencies are lifelong bleeding disorders that discontinue blood from clotting smartly. Folks with bleeding disorders dwell now not possess ample of a selected clotting side, a protein in blood that controls bleeding, or else it does now not work smartly. The severity of a person’s bleeding dysfunction in overall depends on the amount of clotting side that is missing or now not functioning. Folks with hemophilia can ride uncontrolled bleeding that can result from a apparently minor spoil. Bleeding into joints and muscle groups causes severe anxiety and incapacity while bleeding into major organs, such because the brain, can reason death.

About the World Federation of Hemophilia

For over 50 years, the World Federation of Hemophilia (WFH)—an global now not-for-profit organization— has worked to improve the lives of of us with hemophilia and diverse inherited bleeding disorders. Established in 1963, it’s a global network of patient organizations in 140 international locations and has legitimate recognition from the World Health Group. To fetch out more relating to the WFH, please talk over with  www.wfh.org.

SOURCE World Federation of Hemophilia

Connected Links

www.wfh.org

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